Chronic immune thrombocytopenia in Denmark, Sweden and Norway: The Nordic Country Patient Registry for Romiplostim
The NCPRR was established in April 2009 as a cohort study of all adult cITP patients in Denmark, Sweden and Norway (combined adult population = 15∙4 million persons) with study inclusion continuing through 2019. The three countries have tax-funded health care systems. ITP patients are referred by their general practitioners to hospital-based hematological specialists. Hospitals are required to report data on all hospital visits to nationwide hospital registries. Virtually complete follow-up for hospitalizations, outpatient clinic visits, and death among ITP patients is available through the countries´ nationwide hospital and population registries, linkable through the personal identification number (PIN) assigned to all residents of each country.
- From thelancet.com