The intercontinental partnership of ITP patient support organizations committed to education, awareness and establishing a global voice for immune thrombocytopenia patients.

GLOBAL ITP NEWS...

• Chronic illness is a lonely thing "For the past year I religiously text my husband, Shea, every Friday afternoon. There’s nothing unusual in that, but the weekly message contains just a number, no words. Triple digits and we’re happy; single digits…
• Lessons from vaccine-induced immune thrombotic thrombocytopenia Adenoviral vector vaccines are effective against SARS-CoV-2 but have been associated with a rare side effect termed vaccine-induced immune thrombotic thrombocytopenia (VITT). Here, we discuss our understanding of how vaccine-induced antibodies to platelet factor 4…
• SARS-CoV-2 Vaccination and Immune Thrombocytopenia in de novo and pre-existing ITP patients Key Points SARS-CoV-2 vaccines are generally safe in patients with pre-existing ITP but thrombocytopenia exacerbation may occur and requires monitoring Splenectomy and past use of 5 or more therapies predict higher…
• Mum's horror condition that put her at risk of fatal bleeding while pregnant “When I was first diagnosed, they said my platelet levels would continue to drop and there was a risk of internal bleeding which can ultimately be life-threatening,” she…
• Boy diagnosed with bleeding disorder after mum notices red dots on his ear “When Hudson was six months old, he picked up a few infections, but our GP wasn’t concerned as he always bounced back. But a month later, I noticed…

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International ITP Alliance

Busy & Stronger than Ever!

In July 2022, member organizations met in Seattle, WA, ahead of the Platelet Disorder Support Association’s (PDSA) annual ITP patient conference. At our first in-person gathering since 2019, ITP Alliance members shared updates on their associations’ activities and programs to educate and support ITP patients and caregivers. Read the article featured in PDSA’s quarterly membership magazine, The Platelet News HERE.

Then in September 2022, the ITP community celebrated Global ITP Awareness Week! Members of the International ITP Alliance celebrated the strength of the ITP community and mobilized their organizations to raise awareness for ITP. Learn more about the Alliance’s 2022 initiatives HERE, and read the highlights reported in the Platelet News HERE.

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